FAMILY LEADERSHIP

“My entire life can be described in one sentence: It didn’t go as planned. And that’s ok.”

 

-(Anon)

 

New Zealand Systems Transformation

The New Zealand Systems Transformation is being talked about as the most important change to disability support services since deinstitutionalisation.  Now, more than ever, it will be important for people with lived experience of disability to know what they want to do with their ‘one good life” and how they can make best use of the resources available to them. This will involve some thinking, some planning, some people to help us and some money.

Enabling Good Lives

Enabling Good Lives (EGL) is a new approach to supporting disabled people that offers greater choice and control over the supports they receive, so that they can plan for the lives they want.  Resources include our communities, people and services, and EGL principles will guide how the funding can be used to access the resources that need to be paid for.

Self-determination

  • Disabled people are in control of their lives

Beginning early

  • Invest early in families and whanau to support them; to be inspirational for their disabled child; to build community and natural supports; and to support disabled children to become independent, rather than waiting for a crisis before support is available.

Person-centered

  • Disabled people have support that is tailored to their individual needs and goals, and that take a whole life approach rather than being split across programs.

Ordinary life outcomes

  • Disabled people are supported to live and everyday life in everyday places; and are regarded as citizens with opportunities for learning, employment, having a home and family, and social participation – like others at similar stages of life.

Mainstream first

  • Disabled people are supported to access mainstream services before specialist disability services.

Mana enhancing

  • The abilities and contributions of disabled people and their families are recognised and respected.

Easy to use

  • Disabled people have supports that are simple to use and flexible.

Relationship building

  • Supports build and strengthen relationships between disabled people, their whanau and community.

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